Recent events

Things have been going really well since we got home.  Lacey has been recovering nicely, coping with the pain and discomfort of her surgical site like a real trooper.  Occasionally, she has been grunting a bit when at rest and otherwise comfortable.  On Sunday afternoon (11/16), we noticed her first tooth coming through!  So add teething pain to her surgical pain.  Her appetite had been adequate, but not great.  Plus Jeremy and Scott are sick.

 

On Tuesday (11/18), the local cardiologist cut her Lasix from 16 mg/day to 6 mg/day.  He was not concerned about the grunting or fussiness, between the surgery being so recent and the teething.

 

Since then, we have noticed her breathing becoming more and more labored ("retractions"), and her appetite waning.  We had some routine follow-up appts at UCLA yesterday (11/21), and in general they were not very concerned about her symptoms.  With all the compounded circumstances (teething, sickness in the family), they figured it was as expected.

 

There was not much change through the night last night.  This morning Lacey was pretty mucousy.  Gina decided to take her to the pediatrician.  Our pediatrician is not working today, and the one there decided that she should go to E.R. as a precaution, since they would have the host of specialists available.  Gina is in her way there now.  They may want to increase the Lasix again and observe her overnight.

 

Please pray for grace for Lacey, wisdom for the doctors, and peace for us.